Helpful Links

Below are Helpful Links:

Violet’s Web: Vi Jones-Medusky’s Blog

Our virtual bulletin board for Vi’s friends, family, and caregivers.




Patients Like Me





The Muscular Dystrophy Association is the world’s leading nonprofit health agency dedicated to finding treatments and cures for muscular dystrophy, amyotrophic lateral sclerosis (ALS) and other neuromuscular diseases. It does so by funding worldwide research; by providing comprehensive health care services and support to MDA families nationwide; and by rallying communities to fight back through advocacy, fundraising and local engagement.



The Institute For Family Enrichment (TIFFE) exists to provide innovative responses to societal problems in Hawaii having impact on children and families. TIFFE is dedicated to providing training, consultation, educational programs and therapeutic services designed to improve the quality of personal, family, and professional relationships.




ALSA Golden West Chapter

THEIR MISSION: Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.

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Their mission has precise focus: to discover and develop effective treatments to end ALS. A donation to ALS TDI is an investment in advancing treatments for patients today. We bring in experienced professionals from the biotech and pharmaceutical industries, invest in cutting-edge technology, and engage in collaborations and partnerships to expedite the time it takes to get potential treatments from lab bench to clinical trial. Your support is crucial – every gift makes a difference in how quickly we can achieve our goal to end ALS.
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International Alliance of ALS/MND Associations

About the International Alliance: The International Alliance of ALS/MND Associations was founded in 1992 to provide an international community for individual ALS/MND associations from around the world. Our vision is to engage with our members, prospective members and other organisations to share resources globally, advance awareness and support people with ALS/MND worldwide…

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Embracing ALS


ALS Residence Initiative (ALSRI)

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