Caregivers of Persons with ALS Support Group

Caregiver series

Caregivers of Persons with ALS Support Group Meeting Series
This Month’s Topic:
Losing Control

One of the biggest concerns of persons with ALS (pALS) is loss of control, not only of their bodily functions, but their ability to control and/or participate in decisions that affect their life and care. In this meeting, we will discuss 1) the importance of control in one’s life; 2) what happens when the person with ALS perceives a loss of control; 3) how the perceived loss of control affects the caregiving process; and 4) how to relieve/lessen the negative effects of perceived loss of control on the pALS and Caregivers of pALS.

Open to all current and former Caregivers of Persons with ALS, their friends and other family members.

When: Wednesday, March 19, 2014, 5:30-7:30 pm (usually every Third Wednesday of the month)**

Where: Queen’s Medical Center Neuroscience Institute Conference Room, Queen Emma Tower, 5th floor
(Free Validated Parking at Miller Street or POB1 Parking Structures) **

Other meeting dates this year are April 16, May 21, June 18, July 16, August 20, September 17, October 15, November 19 and December 17.

Facilitator:
Divina Telan Robillard, BSN, RN, MPH
Divina’s husband has had ALS for 30 years. She has been his fulltime caregiver for 23 years. She is a nurse educator, having taught in the University of the Philippines College of Nursing and the Kapiolani Community College. Sixteen years ago, she helped establish the ALS Support Group in Hawaii. For many years, she has also been and continues to be the volunteer facilitator for the MDA-ALS Support Group meetings.

For more info, call 808.256-3932 or email alsohanaofhawaii@gmail.com.

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