Who we are

We are a community-based, volunteer-led organization.

Our Mission is to enhance the quality of life for those individuals in Hawaii who are affected by ALS by providing compassionate, practical support. This includes the person with ALS as well as family and friends.

At some point in our lives, we have experienced ALS – as a patient, caregiver of a family member with ALS, a child of a parent with ALS, a next-door neighbor, a professional working with the afflicted, friend of a friend, a stranger touched upon reading a story of one with ALS.

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WE are driven to provide relevant, real time help to those touched by ALS.

WE are passionate about denying ALS a foothold in a family’s psyche and functioning.

WE will work with entities in every sector of our society, to stop ALS from creating despair, burn out and apathy.

WE will be transparent, honest and accountable in the use of resources entrusted to us by our contributors.

WE will work to preserve the independence, dignity and strength of families with whom we work.

WE will share what resources we have to the local, national and global fight to eliminate the power of ALS to undermine personal, family, and community strengths.


We believe ALS should not only be rare; it should cease to exist.

Download program: ALS Ohana.pdf

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